Friday, February 18, 2011

HOPE...

Hi there...many of you know my plight with Jacob...well...last week we finally got a second opinion...I was over the moon with this specialists interest i n Jacob's illness...It sounded as thought he had a daughter many years ago who had difficulty with her airways..which means he has empathy...a knowledge of what it's like to have a child who can die when he hgets a cold...airway closure is a very scary thing...I mean to be able to breath is the most important thing in life!!!! When we were talking to him, you could see the wheels turning in his brain, and after the consultation he immediately sent him to have some blood tests which he hadn't previously had...for quite rare conditions.... he wanted to help us, and recognised how difficult and stressful our lives must be...you see, this is not a rare thing...I would say Jacob has had about 70 episodes, 30 ish hospital admissions and many many times just sitting in the waiting room waiting for his steroids to kick in...and not to mention the times we just stayed in the er....70 times my poor little guy has, well, I guess you could say, gone through the stress of thinking he was going to die...so have we...you can imagine how pivitol a good specialist is in our life...His new dr sounds like he will help us...so...I did a little art because this is the happiest I have felt in many many years...its called HOPE...water suluable crayons and water colours..just Jacobs little cheap set he got actually...
well...we got the test results yesterday, and they were all normal, which is good, but honestly it left me a little deflated...as it could have been the answer to why he gets sick...
oh well...we are seeing the dr next week to help us...will keep you posted...
here are a few other things I have done in my new moleskine journal..I am yet to do the writing, but will do verry soon, also some pages are still unfinished...lol...



okies...well...I am only beginning to do this sort of thing, so practise makes for better work...lol...
Until next time
lots of it
Mandy
xxx
ps...scroll down to next post, i have announced my OWOH winner!!!

3 comments:

Kristin said...

WOW! WONDERFUL NEWS!!!!! I am so happy that you have found someone who you know you can trust to really help find a solution for you! I imagine that is the most important thing! I am SO happy for you all - and although you still don't know exactly what's up, I can't wait to hear what happens in the future!!! YEAH! xoxoxoxo

scrapwordsmom said...

Hi, Mandy!! Beautiful work...I really love the hands with HOPE. Nice work. And so sorry about your little guy. I will be praying that you find an answer very soon. I can't imagine how stressful that would be.

And thank you for always saying such kind words on my Blog. You are the best.

Leslie

Kristin said...

Thank you for your sweet message - any new news with Jacob? xoxoxo