Help me please and an award

go to here for video

You'll see Jacob in hospital over an hour after he had his life saving medication...


Well...another absence from me...yes, you guessed it, my little guy was in hospital again...when I started my blog i had intention of finding someone else out there in the word who had a condition the same as my son's.... his official title is.....acute life threatening spasmodic croup...basically his upper airways, his voice box area, close over very quickly, within a few seconds sometimes...at any point in a cold or virus....many of you probaby have had one of your children or friends chidren have croup...the difference is that Jacob's airways can close within a few seconds and that he is now 9 and it is still happening and on such a regular basis...this is where I need your help. Because it is so rare, in fact his specialist doesn't really know of any one ever, anywhere having it as accutely at such an old age...I would love to hear if any one of you know anything about anyone with this illness...

I am really going quite insane because the treatment is to watch him 24 hours a day...its tiring and emotionaly draining. and now he looks at me and asks me is he going to die...it breaks my heart to think on such a regular basis he tinks he will die...I would like to know if there is some hope for him, that there may be a cure, a fix, or something out there that can help him and me!!!

I need to talk to someone too...just to vent and know that someone understands...

I carry with me everywhere an emergency bag with loads of drugs and oxygen tank...its blooming heavy and so ugy...but we affectionately call it our e bag!!!lol...

We have not been on a holiday, when we go places it can't be when he is sick, and because he has a crappy immunity, he is sick quite often....we have been on a coupe of few day trips to the beach when he has been well. so i shouldn't complain too mush...lol...we need to know that if we go anywhere there needs to be an amdulance very close!!!!but I still take him to the city for adventures....so we try not to make him m iss out too much...

He is homeschooled because of his condition and when his twin goes to regular school and he is desperate to go too...well...it makes life tough!!!

This video is of him after he has been given his nebulised adrenolin and he is in hospital still having difficulty, but the emergency is over...the other is of his e bag....
so please...if anyone can hep me. i think you would have no idea how much i would appreciate it...

also the beautiful kristin at
TWINKLE TWINKLE

has given me this lovely award....thanks kristin...i think this blog entry is long enough for today without saying stuff about me..next entry!!!!lol...

until next time...
lots of it
mandy

xxx

its been a while...

Indeed it has...my children have all been sick and i am sure many of you know the story with my little guy Jacob...well needless to say we had far too many close calls with him...which is emotionally and physically draining...so of course I got sick and it took ages for it to go, in fact we all still are only in recovery mode at the moment...many of you would aso know when you're sick its hard to feel creative, thus, i have only achieved 2 things...I made my lovely sister a birthday card and I made a friend a little painting...if any of you know the Juno tracks, there is a quirky little song about everything wishing it was something else...its one of my and Jacob's fav songs, and my friend likes it too so i made him this little set...sadly i took no photo of my sisters card...but she loved it...

on the bowls front...lol...my 3 sisters and I won the club 4's...woop woop!!!!

Well...until next time, boy i hope i can show you some scrapping.....
lots of it
Mandy
xxx

Monday's child...I'll be there for you

I'll be there for you
when the cold wind blows
hold onto your hand
when you walk tippy toe

I'll be ther for you
on the very first day
you walk off to school
"love you...have a great day"

I'll be there for you
when you hurt your knee
when you stumble and fall
you fall from the tree

I'll be there for you
on the first time
someone breaks your precious heart
you'll always have mine

But for now
let me hold you close
sing you a lullaby
"Have sweet dreams little baby...
hush now don't you cry...

I'll be there for you..."

By mandy snow
inspiration has come from this lovely painting...go check out mondays child and give it a go..i just wrote this in 5 minutes...seriously...its not fabulous but i'm very happy with it...it reminds me of how quickly time really does fly with your little ones, and before you know it they are all grown up...so make the most of the hugs and cuddles!!!
maybe not really for a child to read, but it's what came to me to write...now i have the fun of checking out everyone elses poetry now...you're better off doing it this way as you want everything to be your own idea and not get persuaded by the other wonderful poets that enter this challenge...

until next time
lots of it mandy
xxx

Monday's Child..Waiting for Santa

Waiting for Santa

Staring out the window
Waiting patiently
Trying to see Santa
Just Jacob and me.

See...
Mum said if we are good
In fact, every girl and boy
Will get a visit from Santa
He'll even leave a toy!

all year we tried so hard
To do everything just right
Kept our bedroom tidy
Went to bed at night.

Helped Mum with the dishes
ate up all our tea
Were kind to one another
Tried as hard as can be.

So...
Dear Santa please hurry
Leave the gift under the tree
What present will you bring
For Jacob and me?

Written by mandy Snow
for monday's child
you can find it here...


Illustration by: Henriette Willebeek La Mair 1920's

In our household of 6 children...I am a realist...christmas to my kids when they have been little was all about santa and presents...lol...the excitement of running to the tree in the morning and finding a gift...or twenty!!!! with their name on it...they know all the other stuff that goes with christmas now, but, you know i am sure....anticipation is such a wonderful thing to watch in your child christmas eve, and every year all my kids have looked to see if they can see rudolph's red nose in the sky....!!!so this photo reminded me of that...and these 2 look like twins so i wrote this poem from Maddie's point of view...
hope you like it...
until next time
lots of it
mandy
xxx

artistic mother...finally

Oh yes she did...lol...

I finally got to do a wee bit of craftiness...
not enough mess on for this page, tho i did like it because its nice and quick....
i love this photo of maddie from when she was a toddler...about 3 i think...
this is one of the activities from shona coles book...the artisitic mother...this book is an inspiration...the activities through the book are fun to do...i am not doing some of them as i woud not use them...but so many are wonderful...and times some of them by 6...lol...

so...thanks to trudy for running the artistic mother's group.....
and here it is...hope you ike it...

don't forget to scroll down for my latest poetry...i am so loving writing again!!!!

until next time
lots of it
mandy
xxx

Monday's Child and Kristin's Giveaway...

One Day

I just don't want to be here
I'd rather be at sea
Sailing over the oceans
a pirate's life for me.

Or maybe the king of the land
With a room full of gold
a crown upon my head
People doing as they're told.


No,
Better still a race car driver
In my red car I go so fast
Wheels go spinning, aways winning
Never ever coming last.

But...
then again an astronaut
In my spaceship traveling far
Pressing buttons, floating, flying
Finally reaching that bright star.

But since I'm only seven
Here at school I'll have to stay
Keep on dreaming of what I'll be
One day.....one day!

By Mandy Snow



Well....here is my go with mondays child

the picture is wonderful...by Jessie Wilcox Smith...

check it out here




Kristin also has a giveaway....
she is a talented lady...go check her out!!!here

Until next time
lots of it
mandy
xxx

Monday's Child

The Beach

With eyes wide open

Standing on the beach

Waves trickling along the sand

Just out of reach.

Taking one step forward

Then another one

Running back so quicky

Beginning to have fun.

Shoes and socks are off now

Sand between the toes

Venturing a little closer

Confidence grows.

One more step closer

Foam tickles the skin

Just one last step

and finally in.

Kicking up heels

Splashing water everywhere

Jumping and squeeling

Breathing in sea air.

Mandy Snow

Go check out

this here

This place...monday's child, is such an inspiration....this is my second attempt at writing children's verse....

until next time
lots of it
mandy
xxx